Category: Updates

We have had a quiet 2 days since transplant. Things are going well so far and we are grateful. We can tell Bo is starting to feel the effects of the chemo and is showing some signs that the sores have started lower down in his digestive tract. Will you please continue to pray for […]

Hello Everyone! Just wanted to give a brief update. The transplant (infusion of marrow cells) went beautifully. It ran through Bo’s IV over one hour and Bo tolerated it well. With such a large volume for such a small boy, it did make his blood pressure climb a bit and we have been watching it […]

We just learned that the cells have arrived and are being prepared for Bo. So many emotions, but mainly gratitude and excitement. Our donor is a 19 year old from Germany and we are thinking about him today and the amazing sacrifice he made for our boy. Thanking God for him ??❤️ Bo is scheduled […]

Hello Friends! Today was marked on Bo’s transplant calendar as a “rest day”, and I am happy to report that it has felt so restful. On chemo days, I find myself stressed, but today has been just the reprieve we have needed. I described today to a friend as feeling like Christmas Eve–there’s so much […]

I can’t believe we are already at Day -2. This morning Bo had his last dose of chemo…EVER. Hearing the beep of his IV pump tell us that the infusion was complete was one of the sweetest sounds I’ve heard in a long time (and those beeps can be annoying, as I’m sure some of […]

Hi All! It’s been a quiet weekend around here and Bo is doing really well. Today was day -4 and the second day of the new chemo med. So far, his diaper output is exactly what they want to see and his numbers are all looking good. His appetite has definitely started to decrease, so […]

Hi Friends! Bo will receive his last dose of chemo med #1 at 10pm tonight! ? He’ll also receive the last dose of the anti-seizure med tomorrow morning at 9am. It feels like we have passed one milestone so far! Today Bo had two visitors! First, our very favorite Chemo Pal, Jenny, came by to […]

Hi All, Thank you so much for praying and for your encouraging messages. The TPA worked exactly like it should have and Bo is back to having a normal, functioning line. PRAISE GOD! Apparently what happened was that Bo’s body started to view his central line as foreign and essentially plugged it. It’s not something […]

Tonight as a nurse was flushing Bo’s central line we noticed that it was blocked. We called in an IV Specialist and she agreed that it is blocked and they have to try to unblock it using a therapy called TPA. If this doesn’t work, the alternative is a surgery to install a new line, […]

Hi Friends! Today is considered day minus 8 since we are eight days out from Bo receiving his transplant. As I am writing this, Bo is sleeping while his body is receiving the fifth dose of chemo. He will receive this chemo med every 6 hours round the clock–4am/pm and 10am/pm. He is acting like […]