January 2, 2020– Day +105

We have a prayer request today! I received a call from Bo’s transplant doctor a bit ago and she is concerned about his higher than normal liver enzymes. After his VOD (the liver issue that sent us to the PICU), his liver looked like it was recovering and the inflammation was going down. His most […]

December 13, 2019– Day+85

I am happy to report that week 2 at home felt much smoother than week 1. We are starting to figure out our routines and feeling more confident in our ability to care for Bo outside of the hospital. A HUGE praise to report—Bo has started eating food!!!!! I was feeling discouraged wondering if he’d […]

December 7, 2019, Day +79

It’s hard to believe we’ve been home for a week. Some moments if feels longer, other moments it feels shorter. This week has been much harder than we anticipated. We had visions of home feeling relaxing and restful but instead it’s felt hectic, exhausting and chaotic—that’s the honest truth. It’s just been hard. But I’m […]

November 7, 2019– Day +49

It’s been a quiet few days around here! Some days have felt more like 2 steps forward, one step back. Other days like today feel like 5 steps forward. It’s hard to predict when we’ll have good days and tougher days, but we are grateful to be seeing progress nonetheless. Bo had continued to struggle […]

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