We just learned that Bo’s liver is completely blocked, which is what is causing his fluid build up. The good news is that this is what they thought might be happening, there are things that they can do, and they caught it now and are going to intervene at the earliest possible time.
The cause of his liver issues are not related to the transplanted new cells themselves, but it is caused by the chemo he received prior to transplant. Even while we are treating this new issue, his new cells will still be working on engrafting and will hopefully be able to support his body in other ways through his healing.
The plan for what’s going to happen is extreme. We will be transferring down to the PICU in a few hours. Bo will have surgery to put in a new central line for dialysis. They will be starting him on a med to unblock his liver and will be beginning dialysis shortly after. The liver med comes with a lot of risks, one of the biggest is bleeding. He will be on this med for 28 days. They may intubate and sedate Bo so that his body can rest long term. All of this is so hard and overwhelming and our minds are still spinning, but I wanted to communicate all of this because we are desperate for your prayers. We are heartbroken and weary.
We will update here as we are able. Thank you, thank you, thank you.