Bo’s bone marrow biopsy results finally came back and we are excited to report that Bo is officially 100% engrafted. This means that all of the cells that were tested in his marrow are those of his donor. Not a single cell of Bo’s remains–including any leukemia cells. This is the news we have been […]
October 31, 2019– Day +42
Bo’s CMV results came back today and it is still undetected!!!!!! We were told that they will discuss stopping the CMV med tomorrow morning at rounds. I am so excited!!! One encouraging thing in regards to his graft and counts is that today we saw a huge bump in his ANC despite being on the […]
October 30, 2019– Day +41
Bo seems to have turned a corner yesterday for the better! He has more energy than we’ve seen in 5 weeks, he’s gaining strength, and his kidneys are becoming more and more stable. His kidney team has decided that they want to try skipping tomorrow morning’s dialysis. They aren’t sure if he’s ready, but they […]
October 28, 2019– Day +39
We have wonderful news! Bo’s CMV results from Thursday came back as weak positive, which means that there were only traces of virus detectable, but not a quantifiable amount. Today’s results already came back and the virus is UNDETECTED! Glory to God! Our team wants to see two undetected results before taking Bo off the […]
October 25, 2019– Day +36
Hello! It’s been quiet around here this week, which is a good thing. We’ve needed some quiet days after our time in the PICU. Bo’s liver and kidneys continue to slowly improve. We don’t have any gauge on how long it will be before he is fully recovered, but any improvement is progress and we […]
October 22, 2019– Day +33
Bo had good days yesterday and today! I think settling back into life on our oncology floor has really helped. It feels like he’s coming back to us slowly but surely. We learned yesterday that Bo’s blood type has officially changed to that of his donor. Bo went from A+ to A-. This is a […]
October 20, 2019– Day +31
Well, we finally made it up to the oncology unit! It feels so good to be back up here and we are eager to see how Bo improves outside of the PICU. Unfortunately, as of this morning, Bo is holding onto more fluid from the last 24 hours than he has been since coming off […]
October 18, 2019– Day +29
Well, we are still in the PICU, but not because Bo needs to be here! The oncology floor is completely full and has been for several days. We were told the soonest they might have room for him is tomorrow. Our hearts are ready for the next phase of Bo’s recovery, but we are grateful […]
October 16, 2019– Day +27
We are being discharged from the PICU tomorrow! They started the conversation with us last night and I couldn’t believe it. Bo is making some big strides lately. It’s hard for us to see how much his body is healing internally because we don’t understand all the tests they run daily, but we are being […]
October 14, 2019– Day +25
This morning Bo was able to be disconnected from his dialysis machine. His kidney team is pleased with the amount of time he’s been able to be continuously connected to the machine and are curious to see how he will do disconnected. The last time he was taken off the continuous machine, he put fluid […]