Bo had good days yesterday and today! I think settling back into life on our oncology floor has really helped. It feels like he’s coming back to us slowly but surely.
We learned yesterday that Bo’s blood type has officially changed to that of his donor. Bo went from A+ to A-. This is a big deal as it means his journey to engraftment is going well. He was supposed to get a bone marrow biopsy on day +28, but with everything going on in the PICU, they decided to postpone it. He will get the biopsy done tomorrow at 2:30pm PST. This is to look for any sign of lingering leukemic cells. Our prayer is that there are NONE and that there never will be ever again!
Bo had an ultrasound last night to check on his liver function. We just learned today that his liver is looking good and the clogging they found several weeks ago is gone! PRAISE GOD! He has completed the liver medication that causes a risk of bleeding, so it’s a relief to know that isn’t a concern any longer. Bo still has a distended belly, but it’s much better than it was. We have been told that he will likely go home with a big belly and it will take months for his liver to shrink back to normal size. As unfortunate as this is, we are just grateful for how God has spared his life these past few weeks and has sustained his healing
We just received the results of Bo’s CMV test from Monday and it is down by half! The counts were around 1100 last Thursday, he received the super cells on Friday, and as of Monday the counts were 600. They hope to see more improvement by Thursday when they redo the test. Praying we can get him off the CMV medication and continuing to pray for the protection of his graft.
It’s hard to believe we have been in the hospital 43 days so far. I hope to be home by Thanksgiving, and our care team seems to think that’s a realistic goal. We can’t wait to see our boy back at home and on the other side of this part of his healing process. We are so grateful for your continued prayers and support!