I am happy to report that week 2 at home felt much smoother than week 1. We are starting to figure out our routines and feeling more confident in our ability to care for Bo outside of the hospital.
A HUGE praise to report—Bo has started eating food!!!!! I was feeling discouraged wondering if he’d ever eat again and this week on Wednesday, all of the sudden, he began eating normal foods. Granted, nothing is technically healthy, but we will get there. The goal is to get him off formula and it’s happening! Some favorites lately have been pancakes, French toast, turkey breakfast sausage, cheddar cheese, goldfish, French fries, Dino chicken nuggets, and black olives. We are limited in what we can offer him as he’s on a low bacteria diet through Day +100, so I’m hoping to add in fruits (especially berries) and leafy greens once we are able to feed him without restrictions. For now, we’re just happy he’s eating anything!
Both of his clinic visits went well this week. His counts are looking good and very normal for where he’s at in his recovery. We have a final bone marrow biopsy scheduled for January 16th to look for any residual disease. They are hoping/expecting to see no residual disease as his last several biopsies have shown. That will continue to confirm that he is in remission.
Bo has an ultrasound scheduled for this coming Monday to look for any residual leukemic deposits. Early on in his diagnosis, they did ultrasounds and MRIs to look for leukemia in certain areas of the body that the leukemic cells like to “hide”. They only found them in 2 areas, so they’re checking one of those spots to confirm that there isn’t anything residual disease there either.
This morning Naomi woke up with a barky cough—we immediately suspected croup. She has no other symptoms and the cough resolved within an hour. She seems completely fine now, but now we’re on high alert. This is our first illness scare with Bo home, so we are doing our best to keep some space between them, but it’s tough! They love each other!
Prayer requests for this week:
- That Bo continues to eat and starts gaining weight soon
- For his ultrasound on Monday to go smoothly and for the scan to show no areas of concern
- For protection from illness for Bo and for Naomi to fight off whatever might be coming on
- For continued endurance for Lance and I
Love to you all ❤️