We have been blown away by the prayers and support we have received today. Were in not for all of you and the grace of God poured out on us, we would have crumbled. Thank you doesn’t seem sufficient.
Bo’s line placement surgery went well. We finally got into our room in the PICU around 5pm and he’s been fighting to move around. Unfortunately, because of where his new line is placed, we need to keep him still. I think that will be one of the biggest challenges for us as parents in the coming weeks. So far we have stood on either side of his bed for almost 3 hours holding his arms at his side and keeping him calm.
The nurses are currently priming the dialysis machine and will be bringing it in any minute. They have said that everybody adjusts to it differently, but it can be rocky. They are referring to keeping blood pressure steady and the machine from clotting. Big prayers are needed for dialysis to go smoothly. Bo will be on dialysis 24/7 for several weeks.
They also brought in the med that is going to help heal this liver and unblock it. This is going to be a complicated operation balancing so many meds, fluids, etc. and the med has risks and side effects.
We are feeling exhausted and overwhelmed, but trying to take it one day at a time and feeling good about the medical staff God has put around us.
They have say the first 48 hours are the roughest, so we are desperate for your prayers to carry us.
So many of your have reached out and every text, message, comment, and email are read. If you don’t hear back immediately, please know that we see it and it means SO MUCH to us. Also, if I could be so bold, please don’t stop reaching out. We feel so encouraged knowing you’re praying and when you take the time to remind us, God uses that to encourage us and keep us going.
We love you all so very much. Seeing how loved Bo is brings me to tears all day long. The family of God is a precious thing to be a part of. Thank you for bringing our boy and family before God and carrying us on your faith.