May 5, 2019

Bo is thrilled to be home!

This week at home has been such a gift. We have cherished every moment of being together and have seemed to find our new normal fairly quickly.

Bo has been full of life and energy, and it has been so encouraging to watch. It’s honestly hard to believe he’s sick. He has been able to sleep well at home back in his crib, which has allowed us to catch up on sleep too. He hasn’t had a single fever, and that is a huge answer to prayer!

Naomi has been such a joy this week. She seems to grasp that we aren’t home for good, but with the consistent care she’s been receiving from my parents, she is doing amazingly well. She’s still very much a 3-year old, but overall we are so impressed at the growth we are seeing in her. So much grace.

Tomorrow we are going back into the hospital where Bo will undergo a minor heart repair procedure—part of making sure his heart is healthy enough for his chemo treatments. While under anesthesia, they will also be doing a bone marrow biopsy and a lumbar puncture. The whole procedure is scheduled to start at 10:45am and will most likely last 2 hours. We may be staying overnight in the hospital, but don’t know yet. Your prayers over our boy and his doctors are precious to us.

The bone marrow biopsy results will reveal 2 important things. It will tell the doctors how effective his first round of chemo was and if Bo will need a bone marrow transplant as part of his treatment. We should have results by Friday when we go back to the hospital to begin his next round of inpatient treatment.

Thank you again for your continued prayers and support for our family. Each text or message we received letting us know you’re thinking, praying, and standing with us brings such comfort.

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